Families living in rural and frontier communities lack an integrated system to provide services and supports that assure the best quality of life for their children who have epilepsy. They face geographic isolation. Travel outside their communities can be hindered by weather and road conditions,while others are faced with extensive travel, often out of state, to access specialty services. Parents and health care providers have limited opportunities for training and education related to this condition. Project Acess i8s a multi-state collaborative (AK, CA, NV, WY) working to improve access to health care and related services for children with epilepsy or a seizure disorder.

Our Objectives

• Assemble a statewide team to define barriers to care for children with epilepsy and implement and evaluate activities to promote systems change
• Conduct a statewide needs assessment to better understand barriers to care
• Provide training , education and information to health care professionals and parents
• Develop policy iniatives to promote systems change
• Assure that children who have epilepsy have access to a Medical Home
• Improve public awareness of epilepsy and reduce stigma

News

Governor's Proclamation on Epilepsy Awareness Month