About Us
We are a non-profit organization dedicated to helping individuals with epilepsy...
Our Mission
Wyoming Epilepsy Association’s purpose is to improve the quality of life for
individuals who are challenged by the struggles of epilepsy or seizure disorders
and other health related issues.
Advocacy and Epilepsy
Advocacy is the act of pleading for or defending another person. The purpose of
advocacy is to empower vulnerable people and promote respect for their dignity,
rights and freedoms.
Like others who have disabilities, people with epilepsy often face barriers to their
basic human rights and freedoms. Employment, transportation, education, subsidized
medication, insurance, driving issues, abuse, housing and isolation are just some
of the issues faced by people who have epilepsy.
Through advocacy, change happens: -- changes at the governmental, legal, social,
economic and institutional levels; -- changes to ensure that people with epilepsy
are empowered and their dignity and rights are protected.
Advocacy involves action towards change. The more voices heard the more likely is
the change. Advocacy helps to fight discrimination and complacency; Wyoming Epilepsy
Association is involved in formulating and preparing documents for governmental
bodies, which lobbies for people with disabilities.
Awareness
No More Labels
Labels are Disabling
One of the "invisible barriers" to inclusion and freedom to participate in mainstream
life for individuals with disabilities is prejudicial language. Dramatic progress
has been made to eliminate discrimination since the early 1960's. The Individuals
with Disabilities Education Act or IDEA, enacted in the late 1990s, was the first
movement to use People First Language.
People First Language seeks to put the person first and disability second. People
with disabilities are people first. For people with disabilities to be included
in all aspects of communities, in ordinary ways that most people take for granted,
society at large, must speak about those who have disabilities in typical language,
not by their medical diagnosis. Language is a reflection of how people perceive
each other. Words can be extremely hurtful. No matter if you have a disability or
not.
Society at large has used labels to define the value and potential of people. Individuals
with disabilities are people first. When people with disabilities are referred to
by their medical diagnoses, it devalues them as human beings. The language needs
to focus on each person's value, individuality, and capabilities.
An example would be if you had epilepsy you would say, "epilepsy is what I have,
not what I am." Instead of epileptic, say "person with epilepsy" or "child with
epilepsy." This places the focus on the whole person, not on just one characteristic.
As an adjective, "epileptic" is okay such as "anti-epileptic medication".
Other inappropriate terms or usages may include fit, control, and disease. "Fit"
is commonly used to describe seizures in Canada and other English-speaking countries
of the Commonwealth. In the U.S., the connotation of fit is mental derangement or
loss of emotional control or symptoms of rabies. "Seizure" is preferred to "fit".
Seizures are controlled with medication; persons with epilepsy are not. Also, remember
that epilepsy is not a disease but rather a disorder.
No more labels, they are degrading. Labels evoke negative images and lump people
together focusing on the disability not the person or his/her abilities. Society
won't change unless each person insists on the change. This is not a matter of being
"politically correct". People are individuals - whether you have a disability or
not - and people don't like labels. Labels stereotype and are limiting.
Avoiding stereotyping and showing a bit of sensitivity demonstrates common respect.
A person with a disability should be looked upon as a valuable participating member
of society. For this to happen, the language must change. As the language changes,
the perceptions and attitudes towards people will change and people will become
more accepted by society. Regardless of whether a child or adult can differentiate
between the words, motivation for using People First Language is the same. It is
a matter of respect that everyone should honor. It may be a difficult habit to break
but these simple tips will demonstrate a caring attitude.