Usually, school nurses serve as the “gatekeeper” of this information. It is advisable for a school nurse to have the SAP in his/her files and for the classroom teacher (sometimes more than one per student) to have a copy of the SAP. Parents and physicians usually keep a copy as well.
It will depend on each student. Most students will have the SAP for the entire school year and probably for their entire time at a given school. Students with more complex cases of epilepsy may have their plan updated more frequently, as advised by their physician.
This guide was developed to help parents and caregivers of children with epilepsy and/or a seizure disorder better understand their child’s condition. Professionals serving families of children with epilepsy and/or seizure disorders may also find the Guide to be a useful resource. The 48-page guide is divided into 4 sections: Understanding Epilepsy, Health Care for my Child: Access to Care/Access to Services, Advocacy and Support, Forms and Tools
University of Wyoming, Wyoming Institute for Developmental Disabilities (WIND), was one of the sponsoring partners that lead Wyoming Epilepsy Association's efforts in achieving the goals and outcomes in Wyoming, for the "Project Access: Improving Care for Children with Epilepsy'. WIND developed the "Epilepsy and Seizure Disorders. Wyoming Resources guide for Parents" and they continue to be a great support to Wyoming Epilepsy Association and others in learning about Disabilities. Type your paragraph here.
A Seizure Action Plan (SAP) is a document that provides detailed information about a student’s seizure disorder. Usually, the SAP provides guidelines as to how to appropriately respond to a student who is experiencing a seizure. This document will include input from the student’s guardian and his/her physician.
Every person that regularly interacts with a student who has a seizure disorder will benefit from this document. Specifically, schoolteachers, school nurses, coaches, and other individuals who have supervisory roles, should review the SAP.
If a student has epilepsy, most seizures are not an emergency. Unfortunately, most of the time seizures are treated as an emergency. Yet, often, 911 is dialed. This creates unnecessary medical expenses and is embarrassing for the student. The SAP provides student specific information that will enable the best and most appropriate response for the affected student. It also provides information which details when a seizure IS an emergency.
Everyone benefits from a SAP. Students are more likely to receive an appropriate response, school teachers and school nurses are provided necessary information to help them in responding and providing first aid, and parents are more at ease knowing that a written plan of action is in place for their child.
Project Access: Improving Care for Children with Epilepsy, is a national initiative funded by the federal Maternal and Child Health Bureau, Health Services and Resources Administration. One of five grants awarded in August 2007 was to The USC University Center for Excellence in Developmental Disabilities, Children’s Hospital Los Angeles, grant #H98MCO8579. Two other partners in Project Access also provide support: The National Initiative for Children's Healthcare Quality (NICHQ), and The Epilepsy Foundation.
No, a SAP is free if the student has access to, and visits, a physician treating his/her seizure disorder. The only cost involved is related to the time it takes to write and read the document.