Epilepsy Research Resources

American Epilepsy Society
342 North Main Street
West Hartford, CT 06117
(860) 586-7505
www.aesnet.org

For funding for epilepsy research, go to:
www.aesnet.org/go/research

Epilepsy Journals from The Lancet Epilepsy Phenome/Genome Project
EPGP is an NINDS study looking for siblings who both have epilepsy, and people who have other specific types of epilepsy.
www.epgp.org

National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
(301) 496-5751
www.ninds.nih.gov

RE (Rasmussen's encephalitis) Children’s Project
www.rechildrens.com

SUDEP Aware
Suite 350, 283 Danforth Avenue
Toronto, Ontario M4K 1N2
Tel: (416) 556-8770
Email: info@sudepaware.org
www.sudepaware.org

Other Resources

CURE Epilepsy
www.cureepilepsy.org

Epilepsy Therapy Development Project
www.epilepsy.com

Epilepsy Foundation
www.epilepsyfoundation.org

The Epilepsy Information Network
1-800-642-0500

Hope for Hypothalamic Hamartomas
www.hopeforhh.org

IDEA League
(International Dravet Syndrome Epilepsy Action League)
PO Box 157
Afton, MN 55001
www.idea-league.org

International League Against Epilepsy
www.ilae-epilepsy.org
LGS Foundation
631-509-0206
www.lgsfoundation.org

Matthews Friends
The Ketogenic Diet
P.O. Box 191
Oxted
Surrey RH8 0WL
England
011-44-788 405811
www.matthewfriends.org

The Charlie Foundation
1223 Wilshire Blvd.
Suite #815
Santa Monica, CA 90403
ketoman@aol.com
www.charliefoundation.org
(800) FOR-KETO (367-5386)
310-395-6751

Coping With Epilepsy
www.coping-with-epilepsy.com

Cheyenne Medical Specialists
5050 Powderhouse Rd.
Cheyenne, WY 82009
(307) 634-1311
www.cmsmed.com